What is the Average life expectancy of Edwards Syndrome

Edwards syndrome is a serious and often life-threatening genetic disorder.

The life expectancy of individuals with Edwards syndrome varies depending on the severity of the condition and the presence of associated health problems. In general, however, the majority of infants with Edwards syndrome do not survive beyond their first year of life.

Many babies with Edwards syndrome are born with multiple birth defects, including heart defects, brain abnormalities, and problems with the kidneys and other organs. These health problems can cause significant challenges for the baby and can make it difficult for them to survive.

According to the National Institutes of Health (NIH), only about 5-10% of infants with Edwards syndrome live past their first year of life. The median life expectancy for infants with Edwards syndrome is about 12.5 days, although some infants with less severe forms of the condition may live longer.

It’s important to note that each individual with Edwards syndrome is unique, and some may have a more favorable prognosis than others. However, because the condition is associated with multiple health problems and developmental delays, individuals with Edwards syndrome typically require ongoing medical care and support throughout their lives.